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    The library contains links to guidelines published or endorsed by GIN member organisations from across the globe. It also contains a registry of planned guidelines and guidelines in development. Non members are actively encouraged to register their guidelines in development. Contact [email protected] to find out how. To learn more about GIN and membership, click the website button above.

    Guidelines on the diagnosis, clinical assessments, treatment and management for CLN2 disease patients

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    Collection
    Guidelines International Network
    MeSH Terms
    Expert Mapping; CLN2; Batten; Neurodegenerative Disorder; Guideline Development
    Keywords
    CLN2; Disease Management; AGREEII Assessed
    Date of Last Evidence Search
    01/03/2020
    Methods Applied
    Expert mapping tool; virtual collaboration; modified-delphi
    Guideline Contact
    Sara Mole ([email protected])
    Publication Scope
    Clinical Assessment
    Diagnostics
    End of Life care
    management
    Pain Management
    Social Considerations
    treatment
    Countries of Application
    International
    Guideline Publication Status
    Published
    Languages
    English
    Authors
    Mole S
    Publication Year
    2021
    Name of Endorsing Organization
    Care Beyond Diagnosis

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